Patient and Public Involvement and Engagement

• Provider: HDR UK
• Attendance: Online
• Accredited: No
• Length: Short
• Cost: Free
• Starts: Self-paced
• Topic: Ethical, Legal & Regulatory considerations

Clinicians know a great deal about healthcare from one angle, that of the caregiver. To create systems which truly serve the needs of the public, we must also understand it from their point of view. Across health care and research, we are working towards a way in which ‘Patient and Public Involvement and Engagement’ (PPIE) becomes a normal way of working. Ethically it is essential that we involve individual patients and members of the public. We need to embed public voices in shaping the approach to ‘providing health care’ and ‘carrying out research’ so that ultimately, we benefit the wider public. We must ensure that the work we do is relevant, acceptable, appropriate, and also answers important questions for patients and the public.

We can achieve this by working with patients and the public, involving them as partners and engaging them to help grow their understanding about the latest research and work in different fields. We are continuously seeing more and more examples of how involving and engaging patients and the public, particularly from the very beginning, can improve research methodologies and outcomes. Using these resources:

PPIE is not a new concept, but it is a growing area in health data science. There is already a great range of training in patient and public involvement and engagement and so whilst we will cover overarching topics in PPIE, you’ll find that this series of bite-size videos is specific to health data science.

Through this course, you’ll learn about:

• The distinctions between involvement and engagement.

• The many different ways in which to involve patients and the public in a meaningful way.

• The considerations to make when planning and running your project to ensure PPIE is embedded.

• The ways in which to create a diverse and inclusive environment for PPIE.

• How best to evaluate your involvement and engagement activities and ensure public contributors remain engaged in the process.

• The benefits and ways to engage patients and the public in your work throughout your project – instead of just at the end.

• The support and information available to you in the area of PPIE.

Intended audience

This series is aimed at researchers and healthcare professionals who wish to understand more about patient and public involvement and engagement from a researcher’s perspective.

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